Sickle CellAnaemiaon First World Day

Monday, 22 June 2009, 11:52 am
Press Release: United Nations

Ban Lends Voice to Raise Awareness of Sickle Cell Anaemia on First World Day.

New York, Jun 19 2009 11:10AM Secretary-General Ban Ki-moon today urged Governments, civil society and all other partners to do their part to improve the quality of life of people with sickle cellanaemiaand enable them to live full, productive lives.

In a message on the occasion of the first World Sickle Cell Anemia Awareness Day, Mr. Ban recalled the "welcome step" taken by the General Assembly last December of adopting a resolution recognizing the disease as a public health problem.

He noted that sickle cell anaemia is an inherited condition that affects hundreds of thousands of babies born each year, mostly in low- and middle-income countries.

" I am pleased to lend my voice to the effort to raise global awareness about it. The more people understand the disease, the better we can respond," he said, adding that understanding is also critical to eliminating the harmful prejudices associated with the condition.

The Secretary-General said that although sickle cell anemia cannot be cured, it can be managed through simple measures such as increasing fluid intake, pursuing a healthy diet, taking folic acid supplements and taking medication as needed.

" We must ensure that these affordable, common-sense interventions are available to all people suffering from the disease so that they can enjoy healthy and productive lives."

For its part, the UN, in working to strengthen health systems worldwide, encourages research on the disease and helps build capacity to conduct screenings for it, he added.

On 18 December 2008, the Assembly adopted a resolution calling for the recognition of sickle cell anaemia as a public health problem and "one of the world's foremost genetic diseases." It also called for Member States and the UN system to raise awareness of sickle cell anaemia on 19 June every year at the national and international level.

I Dronningensgate har Norwegian Sickle Cell Anemia Organization (NSCAO) kontor, her treffer vi Benter Ombwayo og Collette Akeyo som er mor og datter. Collette har sigdcelleanemi og Benter har også en sønn som har sykdommen. Hennes tredje barn har ikke sykdommen, men er bærer av den, noe som kan gi hennes barn sykdommen. Det er derfor Collette er syk, fordi foreldrene hennes er bærere av sykdommen......

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