PROJECT ACTIVITIES
- Baseline assessments
Through individuals, health and research institutions conduct survey to find out how many people are suffering or having sickle cell disease. - Information Dissemination (Printed materials for the target
groups)
It is very important that materials on issues related to sickle cell disease are printed in different languages and disseminated to the target groups and other people in the community. - Telephone or online services
In diseases like HIV/AIDS, online services have proved very effective in many countries. Therefore since sickle cell disease is also a sensitive issue for some people, we suppose that in the target groups there are people who will prefer to make use of our services through online contacts. - Face to face counseling, caring and guidance
NSCAO believe that visiting people's homes will be an added value because we may have the possibilities of meeting the patient's family members and friends and share some information with them too.
It's also a symbol for caring and this may encourage people to disclose to seek for information, treatment or taking tests. - Participatory seminars/workshops and capacity building
Communication and sharing of right information is considered to be the key to awareness raising and to effecting personal positive change - Lectures on different sickle cell themes
In addition to small seminars and workshops we shall have audiences where by different professionals and/or providers will be invited to come and give lectures on different themes. We shall also invite some speakers from outside Norway to come and give lectures on specific themes. - Self-support groups
NSCAO promotes, encourages and support establishment of peer-led initiatives such as self-help groups. - Resource database
- Focus group discussions
- Network