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OUR
GOALS
- Provide
advice and assistance to people with the disease and their
relatives.
- Discussion
groups and counselling for those with sickle cell anemia and their
families.
- Information
telephone and online community for people with the disease and
their relatives.
- Run
external oriented information and contact between research,
hospitals, health and educational institutions to spread knowledge
about Sickle Cell Anemia.
- Information
brochures, internet, meetings with government authorities / public
sectors.
- Participating
in conferences, seminars and courses on health issues.
- Run
a national resource and competence center for Sickle cell anemia in
Norway and internationally.
- Continue
with lobbying and advocacy to promote interest and awareness
through research in Norway and internationally.
- Write
articles and presentations about the disease.
- Participate
in national and international programs and projects related to
research on the disease, training and development.
- Participate
in development projects in Africa to offer support, training and
assistance to organizations working with the disease at local,
national and international level.
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